Two years and two months after a minor clot in my right lung and I am still in pain throughout my chest. Pulmonary embolism back pain. I have a strong family history of clots but the hospital and GP wont do the test because mine happened 5 weeks after surgery. People often do not understand that it is now a chronic condition. My main symptom was pain and A&E (UK) did an OK job. I can tell you I have developed painful trigger points along my costochondral joints, my sternum, and at other points in my rib cage. You can e-mail me here if you like: weebs88@icloud.com. I’m so sorry to hear what you went through but I thank God you made it through. I sometimes am short of breath. I still get the cramps in the legs and worry but the doc says it is OK!? Now I need to talk myself into taking my own advise! I did not have any clots in the legs. Pulmonary embolism can result in pulmonary infarction in which there is death of tissue. Lisa…….please assist me in the search for answers……Dr. In fact, as much as a quarter of the U.S. population experiences chest pain that is not related to the heart. On the not so good side, my wife noticed a lump on back of my knee earlier this week. Did they fix or diagnose you? visits which usually went nowhere. This can be a very long process. Some signs and symptoms of pulmonary embolism are: Shortness of breath. I sleep a lot during the day with low energy levels and the lung damage from the PE’s leaving me short of breath. What I need to know is, when to call 911. Hi Maudl . Living like this really blows…Having to take all the medicines now just to get through the day. I’m glad to hear that so many of you have made it years out. That’s the first thing I read that I can not take while on them. March 2020 I received yet another clot in my right lung on my right lung in Jan of 2019. So I want to k or if things are better for you, and if they are….what have you done? I can do day to day things around the house and have even pushed myself to power walk…to build up my strength again.. What is wrong?? I was told in 2017 that I had multiple extensive clots in both my lungs, I was 21 at the time and am now taking Xarelto for the rest of my life. The first thing you may think of is heart attack. You are in my prayers. I was feeling better, when 2 days later i began feeling weird sensations and found it hard to even travel. So after another 3 days in the hospital they send me home starting on Warfarin / Coumidin. I was always energetic and optimistic, so I decided to just keep trying and do my best every day. Lung function test was normal (above average in fact); myocardial perfusion scan was normal; stress test was normal ….. a specialist has now suggested right and left heart catheterization as the next possible step. Followup apt not till tuesday. I react differently than most people and try to keep calm. The problem I suspect is that the pain is such that it absolutely creates anxiety as it feels like something is definitely wrong but the pain is the cause of the anxiety not the effect of anxiety. Did an ultrasound on my heart to make sure my arteries and valves were all good and everything checked fine. Greetings everyone. They work on your lungs/diaphragm/peritoneum/pleura and help with headaches too!!!!! However, after almost 15 yrs, I’ve yet to find anything. My follow up is in one week…anything come to mind on what I need to ask? Asthma. Sometimes I feel those symptoms will never gone. This pain is far more disturbing than just normal “chest pain.” I am finding that the pain in my chest three weeks later is worse than the pain experienced the first three to four days in the hospital and the first day I was admitted I was way behind in my pain medication schedule for at least the first 12 hours. But I have continu d to have severe very dabilitating pain and cramping in my left leg and left side chest and arm pains and numbness in my arm. After reading Peter’s posts about costochondritis, above, I came across this video posted on the NHS site (UK health service), about costochondritis: https://youtu.be/uvJbQFDeyOk The physiotherapist explains the condition and gives advice. I was fine just finished writing my bills out. I have shortness of breath a lot and I’m asthmatic with two inhalers. Is it part of the body trying to heal from pulmonary embolism? you feel pain in your chest or upper back; you have difficulty breathing; you're coughing up blood; These can be symptoms of pulmonary embolism. Along with Norco for pain in my back and chest and ambien to help me sleep. I have to take these shots for six months before the blood clots should be gone. The chest and arm pain scares me as it’s severe and very uncomfortable. Did your hematologist run tests for clotting disorders? Your information is both reassuring and consistent with what I have found or been told. The PE finally dissolved, and I was told by my team of doctors that they thought I was suppose to have died. You said you went to the ER last October, and it sounds like you went home without clear answers. I have no helpful suggestions. I was feeling better and excited about getting back to more of my usual activitites. why does not one forum answer the extreme pain in the chest and down the arm after being diagnosed and discharged? I was also diagnosed with costochondritis about 6 mos after a PE in Aug 2014. had intense chest and right upper back pain last night, had a right lung ablasion in may this year followed by collapsed lung and chest tube inserted followed by pulmonary embolism, on warfarin 2.5 mg daily, went to healthcare facility had ekg, was ok, chest xray showed spot on right lung was told to go to er and given paperwork, had another ekg was ok bloodwork ok had cardiac enzymes checked ok too so was told to call my dr. about the chest xray, so my question is could the pain be caused by the warfarin. I have got two PE’s so far in my life. They tell me it’s all in my head. Less important signs are fever, syncope, abdominal pain, productive cough, wheezes, arrythmia states, such … I’ve developed severe bruising at the Lovenox injection sites, so much so that a trip to the ER was necessary, the hospital ordered another CT scan to make sure the bleeding was subcutaneous. You may experience pain that especially gets worse when you breathe, cough, or move. I am taking xarelto as well. I am still here. I’m in pain everyday, and it’s not getting any better. You think this is because you have not been drinking as much water as usual as you are less hungry than usual. I always feel like there is a balloon in the middle of my chest and it does radiate to my left shoulder and my neck and sometimes is very sharp and lancinating. The pain is still here though, and I feel like I am losing my mind. It is also significant in upper left chest area and now left side of sternum. No one monitored my blood. very interesting I myself was diagnosed with pulmonary embolism 20 days ago found only due to the fact I felt as if i were having a heart attack they did a cat scan of my lungs at the er and found a blood clot in my lungs. I went to the Emergency Room as soon as possible. The doctors want me to be positive and look on the bright side, so I continue to live life as normally as possible. Your email address will not be published. The next day I show up and get my CT scan two hours later they tell me head to the hospital you have a right upper embolism on you right lung. 5 years now since PE (massive, after surgery) and I’d like to share some things that have helped me and how the pain is for me 5 years post PE (which I know is from the clot!!!!!!) When I awaken I finally was able to call the doctor and she told me to come on in then. I have been referred back to specialists … x-rays were normal; echo was normal; ECG is normal … Another VQ scan showed scarring of the lower lobe of my right lung but a follow up CT showed nothing ‘significant’. I have reached out to my primary doc, but have not heard back about the leg issues. BIG change. Im hoping my heart is not affected. I suffered a massive Saddle Pulmonary Embolism in April of 2012. Why aren’t I better yet? I’m on Xarelto for life, but I get chest pain and leg pain in the exact same place about once a year. I hope it helps someone who needs it. Moderate exercise (outside on dry days, indoors when rainy or too hot/humid) Multiple PE’s and my last one finally showed clear after having it over a year. i am as worried as the person that asked the question, I was just diagnosed with Pulmonary Embolism and Pulmonary Thromboembolism in ER at Strong Memorisl hospital. Can these things occur from healing of the lung or possibly damage? Mind you when I first felt the symptoms I was told I was having an anxiety attack and sent home. They then did an intercostal nerve block in my chest 3 weeks ago which only made my pain worse. It was unprovoked; no risk factors so I’m now on blood thinners for life (Xarelto). I have had 10 PE’s over the last 5 years. PE was found in lungs after accident couldn’t breathe…Doctors dont no where it come from…having trouble breathing now. 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